A quick update

Well, it has been a while, so I thought I'd post an update. Last week, Aaron, Isaac, and I went to Salt Lake for a bunch of appointments. Isaac saw Pulminology, Urology, and the wheelchair clinic. Aaron also had a consult and a procedure to take care of an AVM in his lung. It was a very busy trip! Isaac did well for Pulminology and Urology. Everything came back looking good! These are areas where we will continue to need follow up for him, but for now, things look good. He also got to drive around a motorized wheelchair. He had tried one out when he was in the hospital, and did pretty good with it, so we are starting the process of getting him one of his own. He will get a loaner chair in August that he should be able to keep for a month or so. He will have a checklist of things he needs to be able to do before Medicaid will pay for such an expensive piece of equipment, so he will be able to practice all those things and we can get documentation before we actually ask them to pay for it. Apparently, they don't believe toddlers can control a power chair or that they have a need for them, so it often takes a long time to actually get a chair. The ladies that I talked to said it would be a minimum of six months before they could get one for him. Still, we are optimistic. Isaac already passed off most of the requirements while he zipped around the blocked off parking lot! He had so much fun and pouted when we said it was time to stop. The ladies jokingly said we should send in a video of him pouting. It is hard to say no to a face like his! Anyway, it will take some time, but we are excited to be working toward getting a power chair for him.
The rest of the trip was tiring, and Isaac had some issues breathing a couple times, but mostly it went well. Aaron's procedure was uncomfortable, but uneventful and successful. It is nice to have that out of the way.
Since we have been home, Isaac has been doing great! He has been sleeping better at night, working hard in therapy, and he has wanted to get out of bed more and actually eating more too! He still has a long way to go, but we are happy with his progress.